Patient and Family Engagement
Toolkit for Hospital Teams
Introduction
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- ILPQC Overview – An overview of ILPQC and all the work we’ve done to orient patients and families.
- ILPQC Patient and Family Engagement One Pager
- ILPQC Getting Started: Engaging Patients & Families in Quality Improvement
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Part I. Making the Case
Why Community Engagement Matters for Equity and Quality Improvement
- Making the Case: Improving Outcomes Through Patient Engagement
- Partnering with Patient & Family Advisors in Quality Improvement
- Patient & Family Engagement Fact Sheet
Additional Resources:
- Family Voices – Family Engagement in Systems Toolkit: Strategies and Resources
- Family Voices created the Family Engagement in Systems (FES) Toolkit to inspire and support child- and family-serving organizations working to engage families and family-led organizations in systems-level initiatives
Publications and Guidance:
Part II. Assessing Your Hospital’s Readiness
Tools and Strategies to Evaluate Current Practices and Identify Gaps
ILPQC Created Resources:
Additional Resources:
- Patient & Family Centered Care: A Hospital Self-Assessment Inventory
- Checklist for Attitudes about Patients and Families as Advisors
- Family Engagement Checklist
- NHSA Fatherhood Advocacy Toolkit and Advocacy Stories from Fatherhood Practitioners
- NHSA Fatherhood Advocacy Toolkit: Navigating Support Through the Perinatal Period
Part III. Recruiting and Engaging Patient Advisors
Steps to Identify, Invite, and Support Meaningful Patient Partnerships
ILPQC Created Resources:
Additional Resources:
- Diverse Voices Matter: Improving Diversity in Patient and Family Advisory Councils
- Preparing for Patient & Family Advisor Participation on Quality Improvement & Safety Initiatives
- Tips for Recruiting Patients and Families
- National Institute for Children’s Health Quality (2023) – A Roadmap to Inviting, Engaging, and Including Patient/Family Partners in QI Initiatives
- Sample Job Descriptions
Tools for Recruiting Patient/Family Partners (for hospitals to adapt).
- Tool 1: Brochure
- Tool 2: Become a Patient and Family Advisor
- Tool 3: Patient and Family Advisor Application Form
- Tool 4: Sample Letter of Invitation for Advisory Council Applicants
- Tool 5: Info Session
- Tool 6: Checklist
- Tool 7: Participation Interests Form
- Tool 8: Patient and Family Advisor Orientation Manual
- Tool 9: Confidentiality Statement
- Tool 10: Working with Patient & Family Advisory
Part IV. Implementing Your Plan
Putting Your Strategy into Action with Tools, Timelines, and Teamwork
Example Resources to Onboard:
Assessment:
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- Family Engagement in Systems Assessment Tool: The FESAT is an assessment tool that both family leaders and organization staff complete to assess how families are being engaged in a specific systems-level initiative, policy, or practice. The purpose of this self-assessment tool is to help organizations gain an understanding of the effectiveness of their approaches to and processes for partnering with families.
- Family Engagement Scorecard (Excel Spreadsheet)
- Family Engagement in Systems Tool User Guide
- Family Engagement in Systems Assessment Tool: The FESAT is an assessment tool that both family leaders and organization staff complete to assess how families are being engaged in a specific systems-level initiative, policy, or practice. The purpose of this self-assessment tool is to help organizations gain an understanding of the effectiveness of their approaches to and processes for partnering with families.